Doctor Time
Broc’s height problem was getting grave day by day. Now, he was not the tallest person in his surrounding but also in his town. No doubt, his mother started getting really worried about his son’s health. Consequently, she took him to the doctor for the check-up. The medical professional did some test on him in order to find out what exactly was wrong with him. It was not an easy moment for the family who was up on their toes to know the reason. On the other hand, Broc himself was very curious to know why was he growing constantly. Finally, the result came! The result shocked everyone from his family member to Broc himself.
A Rare Disease
At the age of 5, Broc got diagnosed with a rare disease. The illness is unusual in the sense that only one person in every 15,000 people has this disease. It came as a big shock for the family. The doctor disclosed that Broc was suffering from a hereditary condition called Sotos Syndrome that is also known as “cerebral gigantism”. In this condition, the victim never ceases to grow. When Darci heard about her son’s illness she got even more worried. “There’s nothing that can stop him from growing – I don’t know if he will ever stop,” Darci said. These slew of revelations had put a big question mark on Broc’s future. As it was not enough, another shock bigger than this one was awaiting them!
Something Unbelievable Followed
Darci was yet to emerge out of the grief of his son’s ruining health when another devastating news struck her. The doctor further maintained that there are high chances that Broc would not be able to survive this disease beyond his teenage. After learning the truth the whole family got shattered. What worsened the matter was the fact that there was no standard treatment for this disease. The genetic disorders like this are medicated on the ground of symptomatic. It indeed took a long time for Darci to pull herself together. As far as Broc is concerned, despite his life-threatening condition, he went on to live his life in fullest. It was all because of his lively nature, that he got to witness some really unbelievable moments in his life!
Everything About Sotos Syndrom!
No, you don’t have to check Wikipedia to know about the symptoms of Sotos Syndrome. We will acquaint you with this rarely found life-risking disease here only. People who fall victim to this rare disease suddenly began to grow in a rapid manner. The stunning growth is usually noticed in the early age that extends to their teenage. Those diagnosed with this syndrome grows faster than their siblings and friends. Broc had all these symptoms in him that made the case crystal clear for medical professionals. The news got followed by many other shocking revelations. No doubt, it was difficult for his family to bear this pain but there was another big shocking news that was going to dawn on them very soon. This incoming news undoubtedly turned their life upside down.
Another Problem
As mentioned before, the people with this syndrome are taller than ordinary people. And Broc Brown topped even those with this syndrome. His abnormal health became a point of worry for his family. He kept on growing at an unsteady pace even after the checkup. The doctor already had pronounced that he was not going to live past his teens that were enough to distress the family. It was when Brown was 14 that another pronouncement came from the doctor about him that was actually very troublesome. The doctors said that he wouldn’t be able to survive after 15!
And What It Brought
His disease is clubbed with a number of health issues. People with Soto syndrome usually have heart problems. Brown has a strain on his heart, a curvature of the spine, intermittent explosive disorder, some learning defects, and ADHD. It is not the end of his ordeal, he was born with one kidney only that makes him unable to have painkillers even if have suffers any chronic pain. “It kind of feels like a big tennis racket has gone through my back,” says Broc, “I do stuff to stop it hurting and it makes me feel like there’s a needle gone through it – it’s hard to deal with.” He has suffered problems like this many times and continues to do so.