Mother Daughter Bond

The bond between the mother and daughter is strong, with hopes that it will continue to remain strong for a long time. Hannah is even her side-kick! But with Hannah’s special, her mortality is a bitter truth of reality that is hard to face for the mother. “I guess delving into her life expectancy is a hard thing. I don’t like to talk about it but do need to face it,” Jackie confessed. 

Worldwide Cause

The Hugo family endeavors to aid the Potentials Foundation, a charity which helped them connect with others with the same condition as Hannah. They are grateful for the chance to travel with the National Little People of America Conference which gives them a chance to reunite with friends, at the end of which, a seminar, followed by a health checkup of Hannah is conducted. 

Paying It Forward

With the immense amount of help the Hugo family had received from the foundation, they felt it their duty to pay it forward. They held a benefit for the foundation with the motto “size never defines potential.” From this benefit, it has grown immensely, with over 50 families in 19 states and 10 countries.

What Is Primordial Dwarfism?

Those affected with the condition have a growth rate much slower than their peers, leaving individuals with primordial dwarfism perpetually years behind their peers in height and in weight. Hannah weighs just over 28 pounds and measuring a meager 39 inches tall.

Primordial Dwarfism Worldwide

The condition is extremely rare, with only a 100 recorded cases worldwide. The life expectancy of those with this type of dwarfism aren’t expected to live past the age of 30, but Hannah seems to be beating the odds.

Hannah Interviewed

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Hannah was interviewed for a video, and her personal charm really shines through. It is a heartwarming experience watching her speak so positively and with such braveness.